I know its been a while since I last gave an update but I have been finding it hard to write to be honest .
Its sad to say as I put it shes starting to lose a little bit , This brings lumps to my throat writting this .
We decided to take her off her medication as only 1 in 3 people with her condition can have there seizures controlled by medication and we wanted to see what/if any changes there would be without it .
Happy to say her development shot right up in 2 weeks of coming of the meds and we started to see the true Bethany which was such a joy but then the seizures got extremly bad and ended her up in a few worse for ware states so she was put onto a new medication and this is not helping either .
We have been trying to get her a statement to join a normal school as we want her to try and develop and be around normal children and for some reason were hitting problems trying to get her a 1-on-1 at a normal school and I have told them that if she doesnt get it im with holding her from education .
I have also recently been diagnosed with Asthma and spent my fair share of time in hospital aswell but I have given up smoking on the plus side
Its sad to say as I put it shes starting to lose a little bit , This brings lumps to my throat writting this .
We decided to take her off her medication as only 1 in 3 people with her condition can have there seizures controlled by medication and we wanted to see what/if any changes there would be without it .
Happy to say her development shot right up in 2 weeks of coming of the meds and we started to see the true Bethany which was such a joy but then the seizures got extremly bad and ended her up in a few worse for ware states so she was put onto a new medication and this is not helping either .
We have been trying to get her a statement to join a normal school as we want her to try and develop and be around normal children and for some reason were hitting problems trying to get her a 1-on-1 at a normal school and I have told them that if she doesnt get it im with holding her from education .
I have also recently been diagnosed with Asthma and spent my fair share of time in hospital aswell but I have given up smoking on the plus side