Petition to get my friends son home

Man of Honour
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Diabeetes doesnt have insurnace...

Given thats the most likley reason you're going to lose a limb i think wxpecting acident claims to cover it is unlikley

It's quite obvious I'm not talking about those situations, that still comes down to funding calculations.
My point was when there's an accident with insurance then they should be paying for at least treatment NHS doesn't offer (such as advance prosthetics) as standard if not part or all of the treatment cost as well.

Efficiencies and budgets are hard to cut from one place, you have to nibble at lots of areas, so saying diabetes is the biggest cause isn't really helping anything or looking at the issues logically.

Just cutting out tome wasters in gps, A&E and ambulance would save substantial amounts of money and more importantly huge amounts of man hours. But no one wants to do anything as some idiot wont seek treatment when they need it, in case they get fined. Then media will want blood.

In principle I dint mind paying large taxes, if they are used properly and efficiently and they just aren't in the uk. Look at Scandinavian countries, far higher tax, but pretty much every measurable standard is better. Rehabilitation rates, education, etc.
NHS on metrics that actually matter (ie not customer satisfaction) are actually quite poor, deaths, amount of visits to fix you, lasting injuries etc.
 
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Caporegime
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I would be very surprised if they hadn't already been told why it's not possible, but just don't like the answers given.

While stories like this always tug at the heartstrings and I do feel for the bad luck of the family, I personally find it shocking how much time and money is spent on severely mentally disabled people. It is many many times the average person and there is little to no hope they will successfully reintroduced into society and not harm others again. Their care should be paid for privately or by charities not with tax payers money imo.

It's quite obvious I'm not talking about those situations, that still comes down to funding calculations.
My point was when there's an accident with insurance then they should be paying for at least treatment NHS doesn't offer (such as advance prosthetics) as standard if not part or all of the treatment cost as well.

Efficiencies and budgets are hard to cut from one place, you have to nibble at lots of areas, so saying diabetes is the biggest cause isn't really helping anything or looking at the issues logically.

Just cutting out tome wasters in gps, A&E and ambulance would save substantial amounts of money and more importantly huge amounts of man hours. But no one wants to do anything as some idiot wont seek treatment when they need it, in case they get fined. Then media will want blood.

In principle I dint mind paying large taxes, if they are used properly and efficiently and they just aren't in the uk. Look at Scandinavian countries, far higher tax, but pretty much every measurable standard is better. Rehabilitation rates, education, etc.
NHS on metrics that actually matter (ie not customer satisfaction) are actually quite poor, deaths, amount of visits to fix you, lasting injuries etc.

But then you hit the snag of what is justifiable in court.

Is the 70k super duper carbon prosthesis justifyable, but how about the 1.2 million one off prototype with servos and neuro control?


Diabetes is the biggest single cost to the nhs over 10b a year. And most of it is treating complications because patients have not followed the advice/treatment.

They're the ones who should have to privately fund thier health care.

"Right we told you you needed to make X change...you havnt and now need a 30k surgery...go speak to your bank manager"


On the fines front who would be the judge of what was an unnessecery visit? It would be an unworkable system because no doctor would want to make that judgement (and would refuse) and it would have to be based entirely on thebpatients perception on thier situation and so would automatically always be a nessecery visit
 
Caporegime
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Dedicated charities that have to work hard to fund raise, with government help? Special mandatory health insurance from birth for those families identified as having disabled children that will in the future need lifelong care annd support? Just not spending tax payers money on hopeless causes that could go on helping hundreds of others. For me it's the same principle as giving outrageously expensive cancer medication to extend lives by weeks or months, it is grossly disproportionate to everyone but the people involved. It seems that as a society we have entered a new age where technology allows us to prop people up, letting them lead ghastly half-lives, and as a result we are no longer able to let them go and say goodbye with dignity so that people can be allowed to grieve, move on with their lives and focus on improving their on quality of life and that of the rest of their families who need them.

You csnt really diagnose mental health problems at birth.

But what happens when the charities cant aford it? (MH is really not a good seller in the charity world)

You saod yourself these people are a danger.

So what do they just get thrown onto the streets, untill they hurt aomone then prison for the rest of thier life in soletary confine ment?


We aren't talking about cancer drugs we're talking about providing care rhat doesnr just help them it protects you
 
Man of Honour
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Drs have to make lots of things they don't want to, hence their strict guidelines, so you have the same fir people turning up at a&E instead of going to gps etc.

Same for your prototype vs commercially available. Decide in law as it would require a change in law anyway. Insurance will pay fir commercially available prosthetics for the rest of the patients life. When they need replacing due to xyz or when new one increases standard of life past a certain point. Dr already have pads of such calculations inside NHS already.

If your going down the self inflicted route, then you would have to go down that route for all causes not just diabetics, which would be the vast majority of what the NHS does.
 
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You csnt really diagnose mental health problems at birth.

But what happens when the charities cant aford it? (MH is really not a good seller in the charity world)

You saod yourself these people are a danger.

So what do they just get thrown onto the streets, untill they hurt aomone then prison for the rest of thier life in soletary confine ment?


We aren't talking about cancer drugs we're talking about providing care rhat doesnr just help them it protects you
But we are talking about cancer drugs, and hundreds of other things, as soon as we start talking about whether to fund extra facilities, whatever the topic is. After all, the kid in question here is in an apparently suitable facility, is getting treatment, and the public is protected. Already.

The benefits of having him much closer to home aren't about those aspects of his treatment. They're about two things only. Firstly, whether more frequent visits by family would have a beneficial effect on his condition. My expectation is that yes, it would, but I'd bet the extent of that difference would be very hard to quantify. The other benefit is to the rest of his family in terms of travel cost, time and effort, and inconvenience, and any effect on their lives and while those are factors, they aren't the primary concern of the health service, especially when it comes to getting maximum value from limited funding. If you divert millions to build extra facilities solely on the basis of their geographical location, the cost is that those millions aren't available for primary care elsewhere, like an extra hospital ward, or kidney dialysis funding or, yes, expensive cancer drugs.

Do we really want a situation where some patients don't get primary medical care because we spent the money making life easier for another patient's family by cutting travel time?

The simple fact of it is that there are no good choices in what to not fund. This situation is horrible for this kid, so far from family, and for his family, so far from him. Everybody feels for him. But it's not as simple as rubbing a magic lamp and a genue builds an extra facility. It has to come from funding that otherwise funds something else, and someone has to, and apparently has, decided that there are uses for that funding that provide better 'value' for NHS funds.

Personally, there are a few things I'd look long and hard at whether the NHS should fund. For example, cosmetic surgery without an very good physical clinical need. Accident victims, yes, someone dissatisfied with their boob size, no. IVF is another contentious area, and apparently one where where you live at least partly determines how many rounds you get. That is, better provision in some areas than others .... just like secure children's mental health facilities. Yet another, arguably, might be liver transplants for chronic alcoholics, or lung cancer surgery for long term smokers.

But any and all of these are going to be contentious, and provoke some hard ethical issues, if you try to cut them. And every single one of them is going to have people calling for them to be funded.

At the moment, there have been several extremely interesting developments in cancer treatment. It's beginning to look like the 'cure' for cancer might actually be a series of different cures for different cancers, or even a cure specific to a given patient based on manipulating their own cells for a cancer-specific 'antidote'. Or, like a recent trial suggests, a cure for breast cancer might even come, in 11 days, from using two existing treatments in a way not previously done.

If any of those avenues prove fruitful, and indications are promising, the result could well be millions of lives saved over time, and vast reductions in the cost of cancer treatments for the NHS, leaving that previously allocated funding available for other things, be it dialysis machines or, yes, kids mental health facilities in the SW.

In an ideal world, petitions like this would be unnecessary because ideal treatment provision, for everything, would already exist. But we don't have an ideal world, and whatever one person's "need" is will be their highest priority but others, with different problems, will see other things as a higher priority for funding, either at a local level in the SW, or at national level such as NIHCE funding decisions.
 
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I would be very surprised if they hadn't already been told why it's not possible, but just don't like the answers given.

This is painfully obvious, can't believe anyone is bothering to sign it. Autistic children can be incredibly violent with super human strength and completely unpredictable, my ex has an autistic daughter, I was just glad I was twice the size of her or I'd be in a lot of trouble.

As for the mental hospital, they need a specialist care unit who can handle violent and unpredictable patients. They also have to take into account the care of the other patients who may be attacked.

I was stuck in a low category mental hospital for a week after falling out of a first floor window drunk ... everyone was low category, everyday there was 20+ fights and attacks on staff, about twice a week a suicide attempt, remember, these are LOW category patients... one even attacked me over what to watch on TV!

Would I be happy sharing a ward with a high category patient ......... absolutely not.

I'm sorry this lad can't be housed closer, but if there's no facility or beds, there's nothing that can be done and the parents can moan to the News all they like, it'll change nothing.
 
Man of Honour
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And if people don't voice out, if there's no campaigns, no charity etc. Then mental health funding will remain well below what is needed and government could justify ignoring it.

This is just an extremely small part of a growing vocal voice about mental health care funding.
 
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I'm sorry this lad can't be housed closer, but if there's no facility or beds, there's nothing that can be done and the parents can moan to the News all they like, it'll change nothing.
Perhaps. But sometimes, as the saying goes, it's the squeaky wheel that gets oiled. ;)
 
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Yep, so this will get funding whilst something else gets quietly cut.
Who knows? Maybe. But probably not.

But my view is that funding decisions should be based on getting the most benefit for the most people, not who makes most noise. But I can't blame those on the wrong end of such decisions for trying the squeaky wheel approach, and I certainly feel for this family.
 
Soldato
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Theres a shortage of mental health hospitals, period. Building and staffing another hospital would help and just because its built as one type of hospital doesnt mean it cannot change or be adaptive with specific wards/areas.

I know that in the hospital I work in, there is a large waiting list and I don't live too far away from Bristol with patients coming in from all around the country.
 
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