That's interesting... only skimmed it but just pondering again... they seem to have a clearer picture when looking at patients with rheumatic disease rather than patients with IBD, I wonder if the IBD cases are perhaps confounded by perhaps IBD patients on anti-TNF biologics tending to have more severe cases of IBD relative to IBD patients not taking them?
Crohns / ulcerative colitis sufferers
- Thread starter ColdAsIce
- Start date
That's interesting... only skimmed it but just pondering again... they seem to have a clearer picture when looking at patients with rheumatic disease rather than patients with IBD, I wonder if the IBD cases are perhaps confounded by perhaps IBD patients on anti-TNF biologics tending to have more severe cases of IBD relative to IBD patients not taking them?
Associate
Sorry for your loss GaryTry and stick to your routine, eat and drink normally etc
Thank you, each day gets a bit easier.
The funny things is, on my last colonoscopy, the nurse afterwards said I was all clear. I sat up in my chair and said really? What she meant to have said Is. It has improved. Hence now only being on three tablets a day instead of the usual six.
Since being made redundant in August last year, I made a career change from being office based to attending college and doing my plumbing course. Still a toilet in immediate vacinity should I need one.
One story I read was a plumber who was an office worker, couldn’t put up with the lack of sympathy of an office environment, retrained as a plumber, kitted her van out with a loo. So now she’s doing her own thing in her own time as fast and as slow as she likes with a private loo a few yards away from wherever she is working. Genius.
Associate
A friend who is an engineer hasn't been diagnosed with anything, he has a very sensitive stomach though. All I'll say is he has a bucket and plenty of bin liners in the back of his van.
I’d have assumed an office would be better than other non office jobs. (Granted plumbers tend to be very close to toilets so I guess fewer dramas there! 
).
I guess there are different office jobs though... if you have to be available to answer the phone or if your breaks are monitored etc.. then it’s not so great.
).I guess there are different office jobs though... if you have to be available to answer the phone or if your breaks are monitored etc.. then it’s not so great.
Caporegime
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- 21 Jun 2006
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How did you get on?
Soldato
Soldato
- Joined
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The coconut oil ? Haven't got round to trying it yet
Associate
I’d have assumed an office would be better than other non office jobs. (Granted plumbers tend to be very close to toilets so I guess fewer dramas there!
I guess there are different office jobs though... if you have to be available to answer the phone or if your breaks are monitored etc.. then it’s not so great.
I have always been in an office environment due to UC, just not letting it rule my life anymore. I'll make sure theres a toilet near me one way or another.
Soldato
Covid vaccine related question: have any of you peeps who have been on biologics had the vaccine yet, and if so, any adverse reactions?
I've watched a presentation arranged by CCUK, led by IBD specialists about a month ago saying there were no known incompatibilities between the vaccines and immunosupressants.
Yesterday, on the CCUK fb group, someone posted something saying anyone that has had a reaction to a biologic in the past won't be allowed to have the current approved vaccines. Obviously this appears to be anectodal only.
9 years ago I developed a reaction to Infliximab (shortness of breath) so swapped to Adalimumab and have been fine since. I believe my reaction was due to developing antibodies to the Infliximab.
My first jab is due on Wednesday.
I've watched a presentation arranged by CCUK, led by IBD specialists about a month ago saying there were no known incompatibilities between the vaccines and immunosupressants.
Yesterday, on the CCUK fb group, someone posted something saying anyone that has had a reaction to a biologic in the past won't be allowed to have the current approved vaccines. Obviously this appears to be anectodal only.
9 years ago I developed a reaction to Infliximab (shortness of breath) so swapped to Adalimumab and have been fine since. I believe my reaction was due to developing antibodies to the Infliximab.
My first jab is due on Wednesday.
Soldato
Congrats on having your jab booked!
I honestly don't have the answer to your question, but I am also on Adalimumab and I was told that we cannot have live vaccines, so maybe that facotrs into it?
I honestly don't have the answer to your question, but I am also on Adalimumab and I was told that we cannot have live vaccines, so maybe that facotrs into it?
Soldato
My work colleague has been having Infliximab treatments for almost a year and a half now and also has a nut allergy and I believe he's not able to be given the Pfizer jab. I've not had any biological treatment and no allergies. Neither of us have been contacted for the jab yet though.
Been invited for the covid vaccine, either this weekend on standby or booked appointment next week. On infliximab so I’ll quiz them when they call me in.
Torn if I should decline it really there’s plenty of other people that should be before me it’s just because of the immunosuppressants.
Torn if I should decline it really there’s plenty of other people that should be before me it’s just because of the immunosuppressants.
Toss a coin if you can't decide
Soldato
I've had it, after some research on my past reaction to Infliximab, and speaking to my IBD team.
I had side effects yesterday (arm was OK, but had chills, temperature, drowsiness, headache) which made me take a sick day off work to sleep but I'm fine today. I have been warned the vaccine may not be as efficient given my low immunity anyway, but hopefully it's still better than nothing. I am massively constipated though, lol and I didn't even take any painkillers.
I had side effects yesterday (arm was OK, but had chills, temperature, drowsiness, headache) which made me take a sick day off work to sleep but I'm fine today. I have been warned the vaccine may not be as efficient given my low immunity anyway, but hopefully it's still better than nothing. I am massively constipated though, lol and I didn't even take any painkillers.
They won't likely know - if you get a phone call I'd presume it is an admin staff member anyway, at the actual vaccine centre I had a nurse rather than a random volunteer and did mention I'm on biologics (they should ask the reason you're there if you're obviously under 65) - asked if I need to do anything with the dosing, like leave my next injection for a while or anything along those lines and she just said it's fine, take as normal etc...
I don't see an issue with taking it, there is perhaps some additional risk/uncertainty with biologics and Covid and IMO I figured it was better to just take it when invited rather than cause additional admin by turning down a jab now and then having to phone up and take up time re-organising being invited for one in future etc...
Soldato
Had my first jab on Friday afternoon. Given the AstraZeneca and have only had a slight sore arm like any other flu jabs I have had in the past. Not on biologics myself but my work colleague has been on Infliximab for the last year or two and he went to get his first jab on Friday as well. They were going to give him the Pfizer jab but he's got a nut allergy so he had to go back today to get the AstraZeneca instead.
Had my jab about 20 minutes ago the Oxford AstraZeneca one. Did speak to the doctor before about being on azathioprine and infliximab, she wasn’t particularly concerned. She was more concerned that I have it.
Kind of odd as it’s definitely the time to vaccinate the ill people, everyone there looked rather ill or clearly with a lifelong condition. Apart from me of course
Kind of odd as it’s definitely the time to vaccinate the ill people, everyone there looked rather ill or clearly with a lifelong condition. Apart from me of course